Friday, July 22, 2016

The C Word – A New Battle Day 2 - Frustrated patient

The past 24 hours have been a tad bit frustrating.  As noted in yesterday’s journal, I received a call from George about an hour after I had gotten home because we were told that a bed would not be available on the regular surgical recovery floor – or the chances were pretty slim.  Apparently when Dr. Bastidas got back to the hospital to check on George he noted that he was still in ICU and he went about to get him moved.  He arrived at George’s bedside just about 9PM.  George was surprised as he had just fallen asleep.  George then called me and I told him I would meet him at his new room since he told me they were “packing him up” as he spoke. When I arrived, he was not yet there -  and did not make it down for about an hour after my arrival. 
Since he arrived at the magical hour of shift change, he had to endure two sets of vital checking, one with the shift going off and one with the shift coming on.  Then his new nurse arrive about 11:30 and proceeded to do some updates with his equipment that apparently are not things available in ICU.  One of the things that has to take place regularly is flushing out George’s TPN (feeding tube) line.  In ICU they used a syringe to do this periodically.  Here, they add another water bag to the line and program the unit to flush the lines every four hour so there is no need for someone to come in and do it.  Hmmm, why is one floor able to have the equipment and not another?? 
At midnight she completed all the things she needed to do and told us that things should be quiet until vital needed to be done at about 3:30AM.  She left the room – and not 5 minutes later one of George’s IV lines starts beeping loudly.  Nurse Valena was nearby and heard it and came in quickly to take care of the “air in the line” coding.  She left the room –and 5 minutes later something else started beeping – the compression line for George’s calves.  She came in and took care of that.  Five minutes later – and the TPN line started up again so we called her in again.  She left and five minutes later the compression line started to beep again.  Seriously?!?!?!  What the heck is this all about!  That was the last of the beeping for the night so we were grateful she figured it all out.
George woke me up at 5AM to use the urinal and we called the nurse in for help (it is a major feat to accomplish getting out of bed with all the tubes, etc.)  Since he was up she fetched the scale so he could be weighed because she knew the doctor would be looking for that number in the system.  A few more things and, 40 minutes later we attempted to get just a little more sleep. 
The next shift came on and things went relatively smoothly.  Since George knew that we needed to PT sessions today, just before ten he asked if I could find the therapist and have her come in.  I told him that the nurse would be in shortly to do an additional TPN flush and we could find out.  At that time, George decided he wanted to try sitting up for a bit so the nurse and CNA came in to help get him situated.  Nina, the PT, arrived about 11 and got him to take two walks to the door and back.  George complains about the “room spinning” and we think that is the dilaudid.  We need to ask Dr. B if there is something else that will adequately administer a pain medication without the spinning because we need George to be able to get up and walk around more but he can’t if the spinning keeps on happening.  Too unsteady for that!
This afternoon was very frustrating as George’s pain medication line ran out and the unit started beeping like crazy.  It beeped for a while but apparently the nurse could not hear it.  I silenced the unit and we gave a call to the nurse’s station.  It took probably 10 minutes for the nurse to come in and take care of it (and me silencing the unit every 2 minutes).  When she finally arrived she changed out the meds and went to add another potassium bag.  This took her a bit of time to set up and, during the set up the unit kept beeping and beeping.  George finally glared at her and said “can you shut that thing up!”  So then she kept on top of silencing it whenever it started to beep while she kept on trying to get the line going.  She left the room after getting it going and the stupid thing started beeping for air in the line.  She came back in and tried to fix it and thought she had but a few minutes later it started again.  Needless to say, the patient was very, very angry!!
This evening I left the room to make a phone call and was gone a while, but forgot to put the call button low enough for George to get it.  (he was sleeping and I did not want to disturb him).  Apparently, shortly after I left one of the lines started beeping because it was complete.  No one could hear the unit beeping, George couldn’t yell loud… and so he listened to it beeping until I returned 45 minutes later.  By this time he was absolutely livid!  Not a good day for man and machine!! 
The PT came in right after all of the afternoon stuff but George was so exhausted form the beeping and stuff that he did not feel up to doing anything!  So she gave him a pass and will be back in the morning. 
We had lots of visitors today – Sara, Keith, Stan, Rob and Angie, Denise and Rosemary.  George did pretty well.  He sometimes dozed off, or listened with his eyes closed, but he managed to hold conversations.  By the end of the day he was pretty tired. We are hoping that things stay relatively quiet so we can catch up on our sleep.  Right now the only line going is the TPN – and I think that one will need to be changed out sometime during this night shift. 
Dr. Bastidas was in this morning and says things are going okay.  No other news for the day on the medical side of things. 
George and I are making peace with his current condition.  Taking a “Let’s wait and see what we are dealing with – and then deal with it” approach. 
Time for some sleep - - hopefully will get a good 5 or 6 hours in with minimal interruptions for me (maybe I will sleep through the shift change tonight?  One can hope!) 



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