Saturday, August 25, 2018

The C Word – R is for Rest – Recovery – Respite – Resolve


It has been four weeks since George’s last treatment. 
R is for Rest – George still has very little energy and spends much time resting in his recliner or relaxing in bed.  It’s not quite the same fatigue he had during chemo, but it is still there.  Some days he literally opens his eyes for only about 5 hours.  And other days, like today, he has been awake and watching TV and reading on his iPad and even enjoying dinner out with some friends this evening.
R is for Recovery – His body is in need of recuperating from the poison injected in his system for eight weeks.  I am happy to report that his appetite has increased some, though is still on the low side as has been the case for the past year or so.  His mouth sores are gone.  His taste buds are reawakening.  He is gaining back a little bit of the weight he lost. Although his blood counts were low at his last doctor appointment, those numbers should now be recovering as well since we are past the 3 week mark.  This means that he is able to go out more and he is looking forward to going back to church in another week.  We do not know how long it will take to get to pre-chemo status but are hoping it is less than the 3 months people tell us about since he did not get a full six month regimen of chemo.
R is for Respite – Sort of going back to more normal.  And, for me, feeling that I can take time away from home and enjoy doing things with others.  Having George’s immune system on the mend means that I can also be out amidst larger groups of people.  I even plan on going overnight to visit my daughter in Roseville.  It’s been over two months since I’ve been away from home for an overnight anywhere.
R is for Resolve – We have resolved that we want to improve George’s quality of life in order to enjoy whatever time he has left here.  Again, we don’t know exactly how to make that happen, but it is a goal.  Life beyond the recliner!  Due to the pulmonary embolism (PE) and blood clot, we can’t fly anywhere for six months – but hopefully will get to a point where we can do day trips or two to three day trips. 
We likely won’t have any additional news for the next few months – unless something happens to warrant our undivided attention.  For now we relish the fact that there are fewer doctor appointments, fewer days of exhaustion and more time to be together.


Friday, August 3, 2018

The C Word – Round 4 done and so are we



I can hardly describe what the past eight weeks has been like.  Chemo has been one horrific experience for George with side effects that took him by surprise.  As each chemo round came and went, some known side effects got worse while others ebbed and flowed depending on where he was in the cycle.
The knowns: 
Neuropathy:  This was somewhat mild and, on the occasions he felt them, appeared mostly at night in bed. 
Peeling fingers:  His finger started peeling at the tips and worked their way down the entire length over time.  This didn’t start until about week five or six which is apparently about the time they would do so.
Mouth sores:  He’s had a few but not ever as bad as ones he had after his surgery and HIPEC back in 2014. 
Loss of taste:  This changes from day to day.  Some days he can taste certain things and other days he can’t.  We never know what it will be.
Loss of appetite:  This has gotten very bad over the past few days.  He has no appetite and is eating very little.  He eats because he knows he has to but would be content to not eat a thing.
Loss of hair:  This has been minimal – mostly some thinning but he does still have hair.  I noticed that it is whiter now than it was.
Loss of energy/stamina:  This is one of the biggest hits to him.  He has gotten very weak over the past two months.  Standing for longer than a few minutes is difficult.  Walks are fairly short ones these days. 
Diarrhea:  Been there, done that. Has had this issue for the past few years. However, the difference is that he started taking Imodium for the first time in a few years.  Even with eight Imodium a day (which, by the way, he can actually take more of if needed)… he still is having issues!
The unknown:
Anal fissure:  We had never heard of these.  They were not on the “list of side effects” and never mentioned by anyone else.  This particular side effect has been so brutal!  They can and did make a grown man cry in agony.  We have tried just about everything to relieve them and at one point had it almost under control - - only to have the next chemo treatment and back the pain came!  This was the absolute crushing side effect ever.
Emotional turmoil:  A cancer diagnosis put us on a roller coaster of emotions.  But chemo has brought a whole different set of emotions.  George finds himself no in control of his emotions anymore.  A touching commercial or a scene in a show will bring tears.  This past week has been especially difficult as we struggle with “what’s next” in our journey.  The fear that exists can be daunting.  Fear of the future.  Fear of being alone.  Fear of change. 
Yet here we found ourselves on the precipice of more change.
On Monday there was a CT scan to find out if the chemo is working.  We wouldn’t find out the results until today.
During the week George did a lot of thinking about his treatment.  He is so tired of being tired – more like exhausted – even after sleeping.  He doesn’t like the fact that he’s not hungry.  He’s lost about 7 or 8 pounds this past week.  He is tired of the pain he experiences every time he needs to use the bathroom.  Given these issues, he decided even before the appointment that he wants to discontinue chemotherapy treatments.  The side effects are not something he thinks he can tolerate for another four months. 
This is a catch-22 decision as one the one hand he feels relieved and hopes to get back to where he was pre-chemo yet on the other hand wonders if he’s giving up too soon.
Going back on “watch and wait” means that we will be fully engaged with palliative care to help treat symptoms as they arise.  Hopefully we can find the right solutions so that George is not only comfortable but wants to do more than sit in his chair. 
It also means that there is no other treatment unless or until something happens to warrant a procedure or a surgery.  This means that should he get a full bowel obstruction, he would likely by hospitalized and treated and further surgery could be involved.  We acknowledge that any new surgeries will result in more lifestyle changes because he is “running out of spare parts”. 
And me?  While I acknowledged that I knew this day was coming, I found myself restless, anxious.  Although the first half of my night was spent in peaceful slumber, I woke to “hearing songs” replaying over and over, something that hasn’t happened since I started taking antipressants and sleep medication.  I finally fell back to sleep but kept having dreams that would wake me up.  I was tempted to stay in bed this morning but knew that the best thing I could do for myself was to get up and do my early morning walk.  I noticed that the pep in my step was just not there today.  A lot on my mind as I thought about the doctor appointment that was coming up.  I was anticipating the surge of emotions as we verbally declared “No more treatments”.  
It turns out that was the least of our worries today. 
The scans showed some stability in two small tumors on the lungs, but nearly all the others had slight growth from the scan a few months ago.  George telling the doctor he wanted to stop treatment was easy.
THEN…. We found out that the scan also showed a “subsegment pulmonary emboli” in one of the lobes of his lung.  As we sat chatting with him about that, his assistant was scheduling an ultrasound for today as soon as possible.  In fact, my phone buzzed with an alert for an appointment in just one hour!  We found out that cancer actually puts one at risk for clots!  Another unknown that we had not anticipated.
We quickly ran home so I could at least pick up my crocheting and have something to do.  Rushing back to the center, I grabbed a sandwich at the cafĂ©. 
After the ultrasound, George came out and said that they found a blood clot in his left leg. So…… back upstairs we went to meet with our oncologist’s nurse.  We then spent the next hour or so waiting for a few things.  Waiting for one of the nurses to find Xarelto at a local pharmacy and check on costs.  Waiting as they talked to the doctor and discuss alternatives after we found out the cost would be nearly $500 for a 6 week supply of starter meds! Apparently, George’s insurance is in the “donut hole” of Medicare where he has to pay out of pocket for a while.  The nurses did an excellent job of sorting everything out and finding a solution that worked for George to get started on meds tonight.
While we are grateful for the scan because it caught the PE before it did damage, we are frustrated that there is another glitch for George.  Not only does he have to deal with untreatable cancer, but now will likely be on blood thinners and hope they do their job of dissolving the clots. As he says, “the hits keep on coming”.  Right now, the clot and the PE are more critical than the cancer! 
This was not at all what we anticipated for the day!  We thought we’d be home by around noon but instead spent nearly 5 hours at Stanford.  Long day for both of us.  Long day of emotional waves, anger and frustration. 
We feel as though the universe just did another flip flop on us.  Not as bad as the one that occurred just 4 years ago (8/9/2014) which started me on this blogging path, but a flip flop none-the-less. 
It is time to take a deep breath and navigate the twists and turns that we both chose this week and also for the ones we didn’t choose.  No more chemo – back to watch and wait and treat symptoms.  Acknowledging that it will take awhile for him to get back to where he was before we started chemo – and hoping he can get there.  And now we also need to be watchful for symptoms in case the clot or PE makes a move.  And, much to George’s chagrin, add more pills into those wonderful containers!  It feels like a pharmacy here sometimes!
For those reading this blog, we appreciate your prayers that the clot/PE issue clears up with no complications.  While we are feeling a little more peace about the decision to stop chemo (I guess it helps to have something else to divert your attention), we pray that things move slowly and that we are able to manage symptoms in order to have some quality of life while we can. 
If you want to support our cancer cause, you can head over to my Etsy site (CAREAngelsCreations) and see what’s there.  I will be adding over 40 bowl cozies by the end of the weekend – I hope!  I had planned on sewing today but we all know where that time went!
If you’ve sent cards or made phone calls to us, we appreciate it so much.  If you’ve visited, thank you thank you!  Anything that brings a smile to George’s face or takes away the boredom of sitting all day long is wonderful!  Keep it up!! 



Sunday, July 29, 2018

The C Word – Quiet reflections



For reasons I will explain later in this post, I felt impelled to reflect on personal experiences with loss and their effect on me.
As children, the closest thing most of us have to loss is that of a beloved pet.  We had so many kittens and cats growing up that I can’t remember most of them.  I vaguely recall crying once or twice at a passing.  The memory so fleeting I can’t be sure which cat it might have been.  I also recall a couple of “burials” in shoeboxes on the side of a hill down near the pond on our property.  During my last visit home the hill is not recognizable anymore, any trace of long gone pets has disappeared.
I supposed I was lucky that my first recollection of a human death was my grandfather in 1969.  I was thirteen years old.  I recall a few things from that period of time.  I knew he had fallen and was in intensive care.  I remember not being able to go visit him there.  I remember crying after he died – and equally remember one of my cousins not crying which left me baffled and feeling I was doing something wrong.  I don’t remember much about the memorial service, but others tell me there was lots of crying going on.  My grandfather was a beloved man by so many.  But, once the memorial service was over and everyone returned home, I don’t remember anyone talking about it much more. 
Being raised in Christian Science, people don’t die, the “pass on”.  While my thirteen year old self probably wanted to grieve, the behavior of those around me did not teach me how to do so. 
In fairly short order, two more grandparents died within the next year, my dad’s father and step-mother.  There was no service for them.  In fact, they were hardly mentioned at all.  Were they gone and forgotten too?
Many years would pass before I would experience close, personal loss.  By that time, I was on the West Coast and these deaths were on the East Coast.  My maternal grandmother, a college roommate, aunts or uncles.    I remember feeling sad but, being far removed from any activity going on in relation to these deaths, it was easier to brush the feelings aside. 
And so it was in the year 2000, when I received a significant blow in my loss experience, that I found myself lost in a world I didn’t know how to navigate.  When my first husband died, I found myself in counseling at the recommendation of one of my attorneys.  Only then did I realize I had never learned to grieve in a productive manner.  Only then did I learn how much those prior death events had impacted me.  I needed to learn this process at the age of 43. 
Looking back at that year of grieving, I realize there were many things I should have done differently.  I was more self-involved than I though I was - and I didn’t recognize what my daughters needed from me.  Not one to want to be stuck in a quagmire, I was determined to push myself through the grief as quickly as possible and move on.  I wanted to be happy again.  It’s not bad to want to be happy, but the way I went about it was probably flawed.
However, in this process God put another man in my life.  A man who would help me cope with some of my grieving issues, who could help put things into perspective, who allowed me to cry yet could also make me laugh.  Someone I could lean on as I went through more personal loss in the years to come.
In 2006, my dad started to deteriorate from dementia.  I was on edge just waiting for the phone to ring.  Knowing this, George suggested I fly home to be with him and to help my mom.  This time with Mom and Dad proved challenging yet rewarding at the same time.  I was able to assist Mom with the care of my dad.  By the time I arrived he was bedridden and not too responsive.  I went between periods of caregiving in ways a daughter should never have to experience – to periods of just snuggling with him and being father and daughter.  It was as if I had a toggle switch on my body – being what I needed to be at any given moment.  Daughter – caregiver – daughter again.  I was with my dad when he took his last breath.  That was such a profound moment.  Heart wrenching yet peaceful as his pain was finally gone.  To this day it is an experience I would never trade away.  While I miss my dad, I recognized he had been fading away for a few years and thus my grief was not as deep as other experiences.
Over the next few years I lost other family members – aunts and uncles mostly.  Again, not being back East when these occurred made it relatively easy for me to not experience much in the way of grief.  When I lost a cousin who was just a few years older then me, I could scarce believe that “my generation” was starting to die. 
Today marks the sixth anniversary of my mom’s death, which is why I pause for reflection.  I was just days away from a planned vacation to visit her for a little over a week.  I was super excited for this trip because I had been relegated to taking care of George’s mom for years at this point and needed to get away.  To say that I was devastated to receive a call from my sister telling me that Mom had died would be an understatement.  Mom’s death shook me to my very core. My vacation turned into a work week as my siblings and I took on the laborious task of clearing out our family home, organized a memorial service, and leaned on one another.  As we went through the house to determine what to keep, save, toss, etc., we had some opportunity to reflect on memories.  With my mind concentrated on getting through this house cleaning, my grief was temporarily suspended. 
In the ensuing months, that grief would slowly take over my life.  I carefully hid it from my loved ones.  Yet I could feel myself slipping further and further into a dark hole.  By the end of the year I didn’t mind that I had to help take care of my mother-in-law as I had no desire to be out with the living.  I didn’t care about going to church or seeing friends.  I was “perfectly content” to hole up at home.  Thanksgiving and planning for Christmas were tedious – doing them out of a sense of obligation. Then, over the Christmas “holiday” time, I knew that I had to somehow pull myself out of my self-made hole and start to live again before it got any worse.  It was then that I stumbled on a volunteer job that would not only pull me out of my slump but lift me up and give me such joy again.  I knew that Mom was my angel as I did something she loved to do (volunteer).  This volunteer job turned into a paying job for me within a few months.  Wow!
Today I spent a little bit of time in the backyard that I designed with some of my “inheritance” from Mom.  In a way, it was spending time with mom as I trimmed a few things that needed to be taken care of.  I can picture my mom in her yard and her garden as she bent over to weed, trim and plant flowers. 
While it was difficult last year to lose George’s mom, her death also brought with it a great sense of relief.  Like my dad, my mother-in-law had been disappearing for more than a decade as she spiraled into her Alzheimer’s riddled brain.  Although we had experienced some truly joyful and fun moments in the months before she died, in the last few weeks she had truly started to leave her physical body. 
As I sit here today and tell you about some of the people I have lost in my life, I am remembering some of the fond and fun memories I have of these people. Lessons they taught me, laughter we shared, conversations that connected us – these are things we gave to one another and things we must remember beyond the pain of loss.
My grandfather had a great smile.  He used to take us “grandchildren” for walks on a lazy Thanksgiving afternoon.  My cousin recently informed us that my grandfather will be inducted into a local Hall of Fame later this year to honor him for decades of blazing walking trails the area. 
My grandmother was a short, stout woman with a great smile and laugh.  One of my favorite photos of Grammy and Grampy is them in their dining room, my grandfathers arm around the shoulders of my grandmother and both with smiles on their faces.  Their home was always open to family and we did have many family times there. 
My college roommate was a tiny woman with a fierce loyalty to her family and a great sense of humor.  She married her high school sweetheart and had three children before her untimely passing. 
My dad did much with little, raising a family of five on a limited budget.  He was a role model of someone who worked hard to make a living.  He also took us on many vacations, giving us a sense of the world around us.
My  mom, well she was our role model for love, for learning acceptance of others, for learning how to give to others.  I enjoyed my chats with mom, ones I had with her weekly for the last eight years of her life here on earth.  We could chat on almost any topic, bounce ideas off one another, relive memories together.  She had and amazing memory – so much better than my own.  The last time I visited her I recorded some of my talks with her so that I could remember them (I didn’t know it would be the last time I would spend time with her.)
My parents together gave us a home that was safe, warm and loving. One always felt welcome there. 
My aunts and uncles are woven into the tapestry of my life.  Reunions, holidays, spending time together.  I was fortunate that most of them lived close enough and some were close enough in age to be playmates when we were young.  While many of us moved away from our “home”, my memories of them are fond ones.  All so different, yet all so loving and supportive of one another. 
My first husband, unknowingly, taught me how to be independent. I had to do a lot on my own as his jobs or his hobbies kept him away from home a great deal of the time.  I watched and learned some basic “repair” skills as he did those things which seemed to come naturally for him.  He was playful, he enjoyed creating things, he enjoyed fixing things, he loved his kids.  He was passionate which could be good but also bad as he could easily get fired up about things not going right. 
My mother-in-law taught me patience.  I had to have a lot of it to help her over the years as there were times she could be a sharp pistol as she fought to maintain her memory and dignity.  She couldn’t understand that there was no way to fix herself.  There were times she would yell or fight – and five minutes later not remember a bit of it!  A roller coaster of highs, lows, ups and downs for so many years.  But I will always remember the funny things that occurred over those years.  She gave us many things to laugh about – yet had no idea she did that!
Loss is inevitable in our lives. The stronger our love for that person was, the harder we feel the loss.  For if we didn’t love, we wouldn’t hurt.  Yet if we allow ourselves to look, we will find the positive things those losses teach us.  We have to look for the rainbow, look for the pot of gold that waits for us as we begin to heal.  It may seem clichĂ© to say that heartbreak and loss makes us grow stronger, but it does.  It truly does.  It may not happen right away.  Not everyone finds that pot of gold because they don’t know how to do so. 
I am stronger for having known these people who are now guardian angels.  Each one gave to me something which has made me into the person I am today.  While I don’t relish the thought of more loss journeys, it is inevitable as “my generation” creeps closer and closer to our twilight years.  I will cherish these relationships while I can.   As I experience more loss going forward, I will be able to look inside myself to see what it was these loved ones gave to me.  So, while I am thinking of it, I want to say “thank you” to those who are reading this blog – because likely you are one of those people who has made an impact on my life, someone I am glad to have met in my lifetime whether for a short time or a long time.  Because of you, I am a better person!


Sunday, July 15, 2018

The C Word – Round 3 – Unexpected Setbacks


Oh my gosh.  The past five weeks have been filled with a lot of turmoil. 
George developed fissures after Round One and we had to go see Dr. Bastidas.  He recommended sitz baths, Ativan and Imodium.  We tried those but things got only slightly better.  After Round Two when things started getting worse again, I put in a call to Dr. B for suggestions.  He suggested more Imodium and Ativan and sitz baths.  You see, George is so tired, we didn’t do these things consistently the first time.  Finally, two days before Round Three, he was feeling well.  Things were nearly normal.  Not a lot of pain.  Yeah!  We thought things were finally under control.
Butttttttt….. no that was not to be the case.  During Round Three things started getting bad again.  Really bad.  So we ramped up again on the meds on Friday and Saturday…. But now we have the opposite problem. 
George woke up this morning with cramping.  And feeling cold.  Uh oh… dehydrated!  I had to remind him that he needed to drink MORE water when he is taking Imodium but since he sleeps all the time he hasn’t been drinking.  He though I was being mean but I said either you drink fluids or I will take you to the ER and have them give you IV fluids…. Your choice.  He opted for the first.  I set up Alexa to remind him to drink water every hour – that way I didn’t have to do it all the time.  I also marked the water bottles in order to get him to drink more than a few sips each time.  By the end of the day he was only slightly better - - tomorrow we will do more of the same!!  I have so many alerts on my calendar to make sure he takes meds, drinks water, eats, etc.  I’m glad “Alexa” can help me out with some of those reminders! 
I am struggling with getting him to move.  One of the things that will help is walking – but he says he is too tired and weak to walk.  However, when you don’t get up and move you do get weaker so you have to fight that.  It takes energy to make energy. 
Cancer plays a huge head trip, that is for sure.  George is so caught up in a cycle that he can’t get out of it.  We did finally meet the palliative care team last week and he has started on anti-depressants (low dose for now) to help combat it.  It takes a few weeks to start working fully.  So far they haven’t appeared to do anything for him.    
It is like he can’t catch a break.  Out of the past 5 weeks he has literally only felt good for about 6 days total.  The rest of the time he has had one pain or another.  He has slept more and more.  He can’t keep his eyes open during the day so even if he’s not sleeping he is just laying in his chair with his eyes closed!  The house is so quiet all of the time! 
I was expecting a few days during each cycle of this – but it has literally taken over his life.  And I feel like he has succumbed to this and can’t pull himself out of it.  He doesn’t have the energy to fight it.  He has a hard time eating, much less drinking, to keep his body not only with the right nutrients but to also flush the chemo out of his body more quickly.  And, just when things start getting better he goes back down and each time seems to sink lower and lower.
I sure hope the anti-depressant drugs will kick in soon.   Mental state has a huge effect on physical state.  He desperately needs something good to happen!!
I do have some positive news – On his birthday he actually was having one of the good days of his chemo cycle.  He got phone calls and visitors that day which cheered him up quite a bit.  Yesterday, Stephanie came down and presented him with a book of well wishes from a lot of different people in celebration of his 65th birthday.  Our kids and some grandkids were here to celebrate with him.  He was not having a great day but was awake to at least enjoy his gifts.
Our granddaughters are here this week for VBS and I sure hope he at least will have a day or two that he feels good enough to engage with them and make some memories with them.  I am enjoying their laughter and playfulness, even riding my bike while they ride their scooters so we all get some fresh air.  They are great kids.
In two weeks we will have the first CT scan to see if the chemo is working.  Not sure what we will do if the chemo is not working.  So many things to think about.  Cancer is hard work for the patient and the caregiver. No matter what choices we make, they will require hard work and determination. 
We are told that “God never gives us anything we can’t handle.”  He must think we are mighty strong sometimes!  Or He just has a warped sense of humor!



Tuesday, June 26, 2018

The C Word – Respite followed by Round Two


I was able to get away for a very quick respite this past weekend.  I had been planning this trip for a very long time and was glad we were able to work it into our schedule.
My niece was married in Chicago on Sunday and it was a great opportunity to take some time to relax and breathe and not have any caregiving duties. 
I say it was quick – because from door to Chicago and back I was only gone 54 hours!  And, when you take into account the airport wait, flight and taxi rides to/from Chicago airport, you can deduct 15.5 hours… I was literally in Chicago for about 38 hours!! 
But… I will take what I can get.  I was able to spend time with two of my siblings, my nieces and the groom as well as extended family.  There was a nice gathering on Saturday evening and the wedding on Sunday evening.  Had breakfast on Sunday with my brother, sister-in-law and sister, brother-in-law.  My sister, her husband and myself even spent a few hours at the Museum of Science and Industry.  While we only covered one of the three floors of exhibits, we saw a lot and had a great time!  And.. on top of that… the weather could not have been more perfect!
It was a great time of respite for me and likely the only one I will get for a very long time.  So appreciate it I did!!
Upon landing in Chicago I was greeted by a plethora of text messages that came in while I was in the air.  My daughter, Becke, was going in for gall bladder surgery.  I have talked with her recently and although we knew that it could happen at any time since her meeting with the surgeon recently, I’m not sure I expected it to happen this quickly.  While there was a part of me that wished I could be there with her and her family, I realized that even if I was home I would not have been able to get up to help out.  Fortunately, things went smoothly.  My son-in-law kept us updated throughout the day.  She has her husband and daughters who can lend a hand for the short recovery this is supposed to take. 
Meanwhile, also back at home, Stephanie was able to come down and spend time with her dad and be here to help him out.  George had a luncheon planned with some buddies of his.  Steph had been given implicit directions from me so when her dad said he would drive his friend Larry to see their other buddy, she told him “oh no you’re not!  You’re not allowed to!”  She took great pride in being able to do this and sent me a message, “Thank you for allowing me to be in the position where I could finally tell Dad that he is not allowed to do something.  It was a beautiful, magical moment for me.”  She will cherish that moment for a long time!!
While I had originally hoped to spend an extra day in Chicago, I needed to be home as today was the start of George’s second infusion.  We had expected it to take a little bit less time today as one of the pre-meds was being cut from 1.5 hours to 1 hour.  Alas, we left at almost the exact same time as the first one.  Again, it is more of a non-event.  A lot of sitting and waiting for each infusion to be done.  We expect that he may be a little more tired during this infusion period.  We hope that the side effects are still minimal.  We also hope that George’s physical issues are resolved enough so he isn’t in as much pain this round.



Thursday, June 21, 2018

The C Word – Emotional Roller Coaster


This week has been challenging for George.  Just as he was starting to perk up a little bit, something happened to take him straight down to the bottom again. 
He was in excruciating pain when in the bathroom.  Agonizing pain.  After a few days we called the oncology doctor on call and explained what he thought was going on and she recommended Sitz baths and Preparation H.  So - - I went out and stocked up on that type of stuff.
Still, today, he was in agony.  Sent a note off to the doctor to tell him what was going on and saying we needed to deal with this even if it meant postponing next week’s infusion.
The response – try the OTHER kind of preparation H (who knew that the difference between the green label and the blue label was significant?  Of course, we had green – they said we should use blue).  He also recommended we try to see Dr. Bastidas.  He also said that regardless of what happens, we are not going to skip a treatment.
Fortunately for us, Dr. Bastidas could see us today.  He explained some of the treatments and what could be happening (he is very good at drawing sketches to explain things).  After examination, it turns out George has an anal fissure.  Hmm, that was not something we expected.  This is a common enough occurrence that the prescription ointment is something they have pre-printed to send us off to the pharmacy.  The other addition is to take Atavan which will relax the muscles necessary.
So… another new regime.  George is feeling a little bit better already so we are hopeful this does the trick. 
We always come away from Dr. Bastidas’ office feeling so much better.  What a godsend he has been.
In the meantime, with George being in such discomfort, his emotions ran high and low for a couple of days.  It is hard as a caregiver and wife to watch him go through this.  All I could do was lend a sympathetic ear and try to reassure him.  I spent more time downstairs than normal to let him know I am here for him. 
I got a few things done when I could as I need to prepare for my quick weekend getaway.  Now that he should be feeling better, I feel better.  He will have company over part of the weekend so he won’t be alone the whole time.  This is likely the only getaway I will get for the rest of the year so am looking forward to taking this trip to Chicago to attend a niece’s wedding and spend time with my sister and one of my brothers. 



Friday, June 15, 2018

The C Word – Chemo Day 4



Today was challenging for George.  Not only was he tired but he was busy going to and from the bathroom.  For the first time in nearly two years he took an Immodium to slow things down so he could rest.  It appears to have done the trick.
He has napped a number of times today for varying lengths.  Just too tired to do much.  He normally is on his iPad for most of the day but he has barely pulled it out in two days. 
One more day – and hopefully he will start to perk up for a bit.  That is our expectation.